Moli was eight months old when she was diagnosed with kaposiform lymphangiomatosis, an extremely rare disease that attacks the lymphatic and vascular system.
After two years of care in Ottawa, her condition was not improving. Moli’s head and neck were becoming increasingly swollen and purple. She was fed by tube and needed a tracheotomy to breathe.
A number of specialists based in Ottawa, Toronto and Boston studied Moli’s case, but the therapies tried had reached their limits. Moli was seriously ill and her condition continued to deteriorate.
The fellows’ impact on Moli’s life
On August 3, 2015, Moli arrived at the CHU Sainte-Justine to see Dr. Josée Dubois. Moli underwent embolization of the spleen to try to reduce the risk of fatal bleeding associated with the disease.
Afterwards, Dr. Dubois and Dr. Michèle David of the vascular anomaly clinic developed a personalized treatment strategy that took a holistic approach to treating Moli’s disease. Care that involved a dozen medical specialities and the nursing team from the multispeciality and transplant unit, as well as bleomycin sclerotherapy, improved Moli’s condition to the point where she was recently discharged from the hospital.
” We’re privileged to have such a great hospital right here in Quebec and some of the world’s top specialists. ”
The Coletti family was not content to simply thank the teams. Beyond words, they wanted to make a significant gesture by offering a generous gift of $10,000 to the CHU Sainte-Justine Foundation.
